Its been a while:

I havent blooged in a while.  My brain has been so fogged up.

However, I was posting in a private support group this morning and wanted to share with you my feelings.

For the last 3 days I have been an emotional wreck.  I struggle with Major Depressive Disorder (and have done for 18 yrs) and there are times when I can spend an entire day sobbing for no reason.

Well, Yesterday was one of those days. I was utterly exhausted, my eyes were burning and I swear I was dehydrated I had cried so much.  I was struggling with a few issues but I couldn't understand how they could be upsetting me so much.

The this morning the penny dropped.  I was talking to my Hubby on the phone about it and he said, "Why were you so upset?" 

DING........

I needed to cry. I needed to be weak, vulnerable, feel sorry for myself and let it all go.  WHY? 

We spend all our lives being STRONG!!  We are asked how we are and we say, "Fine thanks".  Not because we are fine, but because we are sick of hearing ourselves moan about why we are NOT fine.  We put on a brave face, smile through the pain, push ourselves to our limits and beyond, just so that those around us don't worry about how bad we really are.

Remember, having this awful condition changes your life. We grieve for the life we used to have and struggle to see the positive in the life we have yet to come.  Depression is a part of it. Pain is a part of it. Tears will fall.  We are not WEAK. we are STRONGER than we shoulder ever have to be and sometimes we simply need to let go.

Sending out Gentle Hugs to each and every one of you xxxx

Benefits and Work - An E-mail Update

I know many of you subscribe to the Benefits and Work e-mail (and some pay the membership subscription) but for those who don't, here is an update on the DWP and benefit issues.

TODAYS E-MAIL READS: 

As a minister misleads charities about who will be eligible for the enhanced rate of PIP mobility, the prime minister misleads MPs about who will be exempt from the bedroom tax and the DWP tries to mislead everyone about the rise in the number of DLA awards, it’s clear that the coalition is having problems selling its ‘welfare reform’ agenda.

Add to this today’s multiple u-turns on the bedroom tax, top level staff being ditched over at Universal Credit (UC) HQ and the rumours that most of the IT contractors have stopped work on the project, and it seems likely that the problems are more than just presentational.

Not sadly, that claimants can draw much comfort from this, as it’s equally clear that the DWP intend to plough on regardless of the misery and chaos they will be heaping on sick and disabled people.

But, while charities content themselves with writing stiff letters, claimants are not going down without a fight as they take to the courts to try to overthrow some of the worst aspects of the current changes.

PIP ENHANCED MOBILITY
According to disabled people’s organisations who were at a meeting with Esther McVey on 28 February, the minister was very clear that not only would claimants who cannot walk more than 20 metres get the enhanced rate of the PIP mobility component but that:
“the enhanced mobility rate of PIP will be paid to those disabled people who cannot stand and move up to 50 metres unaided or aided safely, reliably, repeatedly or in a reasonable time period.”
This is, of course, completely at odds with the law, which states that people who can walk between 20 and 50 metres will only get the standard rate of PIP.
Disability Rights UK, who were at the meeting, wrote to the minister (external link) on 1st March asking for clarification, but are still awaiting a reply.

Meanwhile, rather than just writing strongly worded letters, disabled claimants have taken to the courts.  Following an appeal via Benefits and Work, campaigners have gathered sufficient disabled candidates to mount a legal challenge (external link) to the reduction from 50 metres to 20 metres for PIP enhanced mobility.  

We hope to have further news of a judicial review in the next few days.

In another cause for concern for some Motability customers, new rules make it much harder for disabled claimants to be driven by a personal assistant who is a foreign national  (members only).

MISLEADING DLA STATISTICS
As the DWP try to fan the flames of prejudice against claimants, Disability News Service has discovered that they issued statistics which showed that DLA claims had increased between February and May 2012, but failed to mention that the number of working age claimants had actually gone down.  Given that one of the main justifications for the introduction of PIP is an allegedly out-of-control increase in claimants, the fact that it is only awards to children and the elderly, who are not eligible for PIP, that are increasing is something the DWP would much rather nobody noticed.

MISLEADING BEDROOM TAX STATEMENT
David Cameron, meanwhile, utterly misled MPs at last Wednesday’s Prime Minister’s Questions by claiming that ‘anyone with severely disabled children is exempt’ from the bedroom tax.  In fact, a Court of Appeal case that would – against the government’s wishes -  prevent some carers of disabled children from having their housing benefit cut where their child is unable to share a room for medical reasons, is being challenged in the Supreme Court by the DWP, who are trying to ensure that carers of disabled children do lose out.  **

 The DWP have even advised local authorities to suspend the part of a housing benefit award that relates to a spare room, until the case has been decided by the Supreme Court.  There’s more details from CPAG (external link) and from Channel 4’s Factcheck (external link).

Members can read more and comment here.

**Stop press:  the DWP have today withdrawn their appeal to the Supreme Court, meaning that local authorities should allow an extra bedroom for children who are unable to share because of their severe disabilities.

The government did announce a partial climb down on the bedroom tax today, by allowing foster carers and soldiers serving abroad but planning to return home to be exempt from the bedroom tax.  But no such exemption is to be introduced for disabled people, many thousands of whom are expected to lose out under the changes due to be introduced in April.

More details from the Guardian.

Meanwhile disabled people are fighting back, with the We Are Spartacus group having mounted a legal challenge against the bedroom tax which had its initial hearing on 5th March.  The judge gave the DWP 14 days to come up with reasons why he should not allow the case to proceed.

UNIVERSAL CREDIT IN DEEP TROUBLE
Work and Pensions minister Mark Hoban has denied claims that contractors have stopped work on the massive universal credit IT project.  

But the DWP have already admitted that, when the pilot goes live in April, at least some of the claims will be processed with a pen and paper rather than using the multimillion pound computer system that is still allegedly on time and on budget.  They have also greatly reduced the range of claimants who will take part in the pilot.

In another sign that things are not going well, UC director Hilary Reynolds has ‘stepped down’ just months after taking over the post.  Her job is now being covered by David Pitchford, the trouble-shooter recently brought in as chief executive of the project.

With so few claimants involved in the pilot, there is the beginnings of a possibility that the whole UC fiasco will be allowed to drag on until the election is over before being dropped, either quietly or with great fanfare depending on who wins power.

PLEASE NOTE ; SOME LINKS ARE MEMBERS ONLY PAGES. THIS IS THEIR CURRENT OFFER:

MONEY OFF ANNUAL SUBSCRIPTION - ENDS MIDNIGHT FRIDAY
If you’re not already a member, join the Benefits and Work community (open access) before midnight on Thursday and you can get £3.50 off the cost of your annual subscription. Just type the following code into the coupon box when you pay:
54729
to get an annual subscription for £15.95, down from £19.45.